If Cheney Can, So Can I

Oooo, former VP Cheney made big headlines - he got a heart transplant! Good for him! It means that age is no limitation. He is 72. Can you imagine getting a heart transplant??? It boggles the brain. I think of the heart as pretty darned close to being my soul. How can you transplant a soul???

Anyway - I think I’m an almost expert on this subject.

I have officially been placed on the “list” for a kidney transplant. I have gone through a myriad of tests to prove I am ultra healthy, other than my kidneys. All transplant wannabees have to be healthy in every aspect - particularly be cancer-free. I am 62 (63 at the end of April).

I am still viable (what a relief!).

My donor can be even older which can increase my odds of getting a transplant, although it won’t be as good as a younger donor.

One thing: I am on “hold” until January because my COBRA extension runs out this summer and I can’t get Part D (Medicare) until the sign up in December. Which means, I need Part D to pay for the anti-rejection drugs that run about $3,000 a month. So - to answer some of your questions - money helps, but only in maintaining your new organ.

I am happy to be on the waiting list, even on hold. It averages three years. So, I figure I’ll be 65 or 66. And I have to live to be 90 years old because that is how I figured out my 401(k). At any rate - a transplanted organ (or at least in my case, a kidney) lasts between 10 and 20 years. (There are cases of much, much longer - and I am always amazed to meet people who have had more than one transplant.) There are about 80,000 people in the US waiting for a new kidney. There will be about 25,000 who get their wish.

By the way. The transplant center would like a list of my living donors. Like, I'm going to walk up to you - my friend - and say something like, "Hey, I love ya, man. Can I have your kidney?" After all - you have two and I only need one. So - hey, man. I love 'ya. Can I have your kidney?????

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Attitude Schmattitude

It really is all in the attitude. How you look at things reflects back to you and “becomes.” It’s like what The Secret tells you – that you attract what you think about.

See, I’ve been going through a whole lot of soul searching and introspection about my progressing illness with kidney disease.

Now – I am a strong believer in positive thinking and in the tenants of The Secret. But then I get all muddled up with 1) thinking positive thoughts and 2) being realistic about what is happening to me. So – if I think about my kidney disease and my failing kidneys and start visualizing me on dialysis and then go further into the type of dialysis (tube in stomach, solution feeds through at night for eight hours) or (surgically installed fistula (extra strong vein) in my arm and going to a center every other day for four hours a day), then according to The Secret I will fulfill my “wish” and be on one of those two types of dialysis.

If I DON’T think about that and visualize me staying fit and healthy just like I am now on less than 10% kidney function (which is hardly noticeable at all!), then am I sticking my head in the sand and not being realistic???

I’m damned if I do and damned if I don’t. Oh, what to do, what to do, what to do.

I’ve got little tapes in my head of Dad’s experience on dialysis (horrible at best), Mom’s viewpoint of Dad’s dialysis (worse than horrible and probably why it WAS horrible), my sister’s experience of passing on dialysis and going directly into a living donor kidney (not great experience if you count the bi-monthly trips to the hospital because of this infection and that infection, losing her house because she couldn’t afford the anti-rejection drugs after the three-year Medicare period was done for), and then my brother’s experience of both dialysis and cadaver kidney transplant (both successful – the dialysis being an annoying inconvenience and dealing with impersonal stoic staff and the continuous, never-ending, always going on, needles.

I’ve been playing these tapes over and over repeatedly (too much) in the last six weeks. I have dreaded dialysis because of my Dad’s experience and I’ve worried about a kidney transplant because of my sister’s experience.

Then I spent the day with my brother on Sunday. What a difference a positive person makes!!

It’s in the attitude. Always. It goes back to that very simple concept – attitude. As my sister-in-law said, dialysis is just another little thing you do in your life, like getting up, brushing your teeth, eating breakfast, hooking up to dialysis, going to work, relaxing and watching TV. It just slips in there and becomes a routine deal. For sure, not a small deal but not a BIG deal either. And one day, you will get “the call” and a new kidney and it will be a perfect match because I’m way more like my brother than I am like my Dad or my sister. And I especially am not like my mother, who seemed to drill into all of us the doom and gloom and death-to-all attitude.

I can do this. I just have to burn those tapes.

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Giving v. Taking; Transplant 101

Hey all! I am back from my round of medical tests - you would not even believe all the places on my body that were xrayed, sonogrammed, echoed, CT'd, scanned, poked, pricked, and prodded. I am going to start journaling something like, Kidney Transplant Procedures 101.

One thing that happened throughout the day was that everywhere I went, one diagnostic room after another, each technician asked “are you a giver or a receiver?” It gave me pause to think about donors. I've been thinking about deceased donors - but there are living donors out there too. A lot of them are officially known to the transplant center as “altruistic” donors. Amazingly enough, these altruistic people simply call the transplant center and tell them they wish to donate one of their kidneys, just because. I find that absolutely totally amazing and “altruistic” doesn't even come close to defining such an extraordinary gift.

I also felt kind of selfish when I was asked if I were a giver or a receiver - interpreting the question as “I'm a TAKER.” Take! Take! Take!

I was simply amazed that there are people out there that think nothing about giving up one of their kidneys – they are willing to go through all the medical tests, the surgery, the follow-up, and living the rest of their life with one kidney.

From here, I have to wait for approval from the transplant committee (if any of the tests come back showing some other illness or cancer – things could change badly). I should be officially “on the list” in three weeks.

Here’s a little tidbit: there are three times the amount of people who NEED kidneys over the amount of kidneys available at any given time.

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Will New Health Plan Cover Me?

So, I start the process of getting on a transplant list tomorrow. It’s a real big deal! I have a typed up schedule of all the different procedures I’m going to have, along with a map of all the locations these procedures will take place. In fact, I have four pages of maps of Sacred Heart Medical Center. I will be visiting one of the parking garages (that’s plural), the Women’s Health Center, Lower Level 1 on the west end, then Lower Level 2 on the east end, then center, then to Lower Level 3 and they’ll treat me to breakfast if I can find the cafeteria, then the 3rd floor in the Doctor’s Building which appears to be next to the garage I’ll aim for.

I’ll have a marathon bloodletting at dawn, and somewhere in there I will have “tissue typing.” Along with CT scan, ultra sound, chest x-ray, another ultrasound, skin tests, echocardiogram – all in one fun day. I am only worried about the “tissue typing.” I mean – “tissue.” Is that like scraping skin off of me??? What’s the difference between skin typing and skin tests? Or are the skin tests to see what happened with the skin scrapings earlier in the day?

I’m taking the day off – maybe I should take Friday, too. After all, I might have no skin by Friday. I’ll definitely be low on blood.

I have a questionnaire to fill out too. “Potential Kidney Donors.” And a big blank space to fill in all my friends’ names. It’s here where I hesitate. How deep and true must a friendship be to ask one friend to go under the knife for another and end up with one working kidney? Yikes. I’m afraid I’m leaving my space empty.

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