Amyotrophic Lateral Sclerosis (ALS) is a motor neuron disease, first described in 1869 by the noted French neurologist Jean-Martin Charcot. Although the cause of ALS is not completely understood, the last decade has brought a wealth of new scientific understanding about the disease that provides hope for the future.
Lou Gehrig first brought national and international attention to the disease in 1939 when he abruptly retired from baseball after being diagnosed with ALS. Most commonly, the disease strikes people between the ages of 40 and 70, and as many as 30,000 Americans have the disease at any given time. | http://www.alsa.org/
The first thing I noticed was everyone laughing and hugging and the air of festivity rang through the park. There was a live band playing very good music and coffee and hot chocolate and krispy kremes were enjoyed by children, adults, people in wheelchairs, volunteers. It was a party! It was a celebration! This was the Walk to Defeat ALS, held at Mirabeau Meadows, Saturday morning, September 13, 2008. Three miles along a portion of the Centennial Trail. I estimated 400 walkers. Maybe more.
There were 12 of us from Scarlett Snickerdoodles. There were several groups of people walking for their loved one – some walking for two or more special people in their lives. There was Team Jason, Team Watts, Team Chicks for Chuck, and many, many others. One team “40” looked like it had 40 participants. I mention Chicks for Chuck because I loved their t-shirt. They loved our hats. I told one that “our Lois” would be arriving soon and she leaned into me and said their Chuck had passed on but his wife was carrying on his fight by helping organize their Chicks for Chuck for the annual Walk to Cure ALS.
We were a wonderful beautiful crowd of people filled with hope and love and anticipation. The cure for ALS is becoming a reality!